Huntington's Disease (Juvenile) Links collected for a friend

Recently, I had occasion to research Huntington's Disease. Here are links to information about Huntington's Disease. 

 

These are merely links to other sources if information. I do not endorse, and have not evaluated, any of the information. 

 

Huntington’s Disease

Link to this page  

http://3.ly/LeeTilsonPageLinksReHuntingtonsDisease

Please send corrections or suggestions to me at

rethinkingpatientsafety@gmail.com

or 

lee.tilson AT gmail DOT com

Background - General approach to medical research:

http://www.examiner.com/health-care-in-detroit/introduction-to-medical-research-for-non-professionals

 

Starting points on Huntington's Disease  

Medline Plus on HD              

Medline Plus Search

 

NIH      NINDS      

Detailed NIH Info Sheet       

Short NIH Info Sheet       

Genetics of HD

 

Wikipedia    

HD              

 

Clustered Search   

HD

 

Good Overview of available websites    

Health on the Net  =  HON

 

HD  Organizations   

HDSA     

Huntington Study Group   

HSG Cohort Study

Stanford Hopes   

Hereditary Disease Foundation     

HD Advocacy Center    

CHDI  

Europe  

World Congress

We Move

Huntington’s Disease Centers of Excellence

Iowa         

Iowa         

NY - Columbia        

Ohio          

Indiana

Clinical Trials

Open Clinical Trials    

Open Clinical Studies   

Clinical Trials Child HD   

Clinical Trials Juv HD

All Clinical Trials    

Clinical Trials MI, OH, IN   

Clinical Trials Michigan

Open Clinical Trials Juv HD     

Open Clinical Trials Juv HD MI, OH, IN

Open & Closed Juv HD Clinical Trials

Huntington’s Disease Society of America  Links   

http://www.hdsa.org/

http://www.hdsa.org/living-with-huntingtons.html

http://www.hdsa.org/living-with-huntingtons/family-care/juvenile-hd.html

http://www.hdsa.org/living-with-huntingtons/family-care/publications.html

 

Michigan Specific Resources for HDSA

http://www.hdsa.org/living-with-huntingtons/family-care/other-med-resources/mi.html

http://www.hdsa.org/about/chapters-and-affiliates/mi.html

http://www.hdsa.org/living-with-huntingtons/family-care/social-workers/mi.html

http://www.hdsa.org/living-with-huntingtons/family-care/support-groups/mi.html

 

For groups dealing with Huntington’s Dis. generally  

http://tinyurl.com/Huntington-s-groups

 

For general info on Huntington’s Dis.

http://tinyurl.com/Huntingtons-info-and-links

 

For groups dealing w Juvenile Huntington’s Dis.

http://tinyurl.com/Juvenile-Huntingtons-Groups

 

For general info on Juvenile Huntington’s Dis.

http://tinyurl.com/Juvenile-Huntingtons-Info

 

Open Directory

http://www.dmoz.org/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease/

http://www.ninds.nih.gov/news_and_events/news_articles/news_huntingtin_clearance_by_autophagy.htm

 

http://www.nih.gov/researchmatters/june2009/06222009huntingtons.htm